I'm

Daughter, Sister, Friend, Fighter

me

My name is Anya and I live in British Columbia, Canada. I am 13 and was recently diagnosed with Lamb-Shaffer Syndrome (SOX5).

My Dad (Bruce) created this page to share information about Lamb-Shaffer Syndrome and to help us raise awareness & funds for research and fun projects! Check out all our links and my story here!

MY STORY!

Learn more about me and what I like!

PROJECTS & FUNDRAISING

We are raising funds for research & accessible / all-ages playgrounds!

GENETIC RESEARCH

Amazing research is underway at the Children's Hospital of Philadelphia!

LAMB-SHAFFER SYNDROME

Click here to read up on LSS!

PICTURE GALLERY

Want to see pics of me? Click here!

PICTURE GALLERY!

  • All
  • Me
  • My Family
  • My Friends

Playground!

I love playgrounds

Ball Time!

I play ball game with my brothers & my Dad!

Boating With Grandpa!

Grandpa & Me in his Boat!

Another Playground!

Can't keep me away!

My Birthday!

Chocolate & Gummy Bags Please!

Play Time!

Hanging Out at Grandpa & Grandma's Place!

The Pool!

Can't Stay Out of the Pool!

My Silly Brother Cullen!

Cullen & His Hat

Park Timeout

Gotta Take a Break Once in Awhile!

Gingerbread House!

Love Making These Each Christmas!

Summer Birthday!

Had ALL My Family Over

My Pretty Mum & Me!

Going To See Opthamologist

Going To School

Love My iPad!

Riding On Josepha!

I LOVE Therapeutic Riding!

My Brother Noah & Me

He Built That Plinko Board!

Projects & Research

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THE NEW ALL-AGES ACCESSIBLE PLAYGROUND!

Hopefully coming soon to North Cowichan, British Columbia!

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EVENTS & FUNDRAISERS!

We are underway on raising funds for the Fuller Lake playground in North Cowichan, British Columbia!

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HELP US RAISE FUNDS FOR RESEARCH!

The Children's Hospital of Philadelphia has a full-time genetic investigator, Dr. Veronique Lefebvre, working on SOX5 gene research!

DONATIONS TOWARDS OUR PLAYGROUND PROJECT CAN BE MADE THROUGH OUR PAYPAL ACCOUNT. ALL DONATIONS ARE APPRECIATED, THANK YOU!!!

Shop!


**COMING SOON**
All Proceeds Go To Fund Research & Projects

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T-Shirts

Lots of different sizes & options!

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Headwear

Hats, Touques & More!

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Drinkware

Coffee Mugs, Travel Mugs, Water Bottles & More!

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Other Merchandise

Mousepads, Umbrellas, Blankets, Flash Drives & More!

GET IN TOUCH

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