My name is Anya and I live in British Columbia, Canada. I am 13 and was recently diagnosed with Lamb-Shaffer Syndrome (SOX5).
My Dad (Bruce) created this page to share information about Lamb-Shaffer Syndrome and to help us raise awareness & funds for research and fun projects! Check out all our links and my story here!
PICTURE GALLERY!
- All
- Me
- My Family
- My Friends
Projects & Research
THE NEW ALL-AGES ACCESSIBLE PLAYGROUND!
Hopefully coming soon to North Cowichan, British Columbia!
EVENTS & FUNDRAISERS!
We are underway on raising funds for the Fuller Lake playground in North Cowichan, British Columbia!
HELP US RAISE FUNDS FOR RESEARCH!
The Children's Hospital of Philadelphia has a full-time genetic investigator, Dr. Veronique Lefebvre, working on SOX5 gene research!
DONATIONS TOWARDS OUR PLAYGROUND PROJECT CAN BE MADE THROUGH OUR PAYPAL ACCOUNT. ALL DONATIONS ARE APPRECIATED, THANK YOU!!!
Shop!
**COMING SOON**
All Proceeds Go To Fund Research & Projects
T-Shirts
Lots of different sizes & options!
Headwear
Hats, Touques & More!
Drinkware
Coffee Mugs, Travel Mugs, Water Bottles & More!
Other Merchandise
Mousepads, Umbrellas, Blankets, Flash Drives & More!
GET IN TOUCH
- ANYA'S JOURNEY FOUNDATION
- 6777 Beaumont Avenue
- Maple Bay, British Columbia
- CANADA V9L 5X4
- contact@anyasjourney.com
