My name is Anya and I live in British Columbia, Canada. I am 13 and was recently diagnosed with Lamb-Shaffer Syndrome (SOX5).
My Dad (Bruce) created this page to share information about Lamb-Shaffer Syndrome and to help us raise awareness & funds for research and fun projects! Check out all our links and my story here!
Learn more about me and what I like!
We are raising funds for research & inclusive / all-ages playgrounds!
Amazing research is underway at the Children's Hospital of Philadelphia!
Click here to read up on LSS!
Want to see pics of me? Click here!
- My Family
- My Friends
Projects & Research
We are underway on raising funds for the Fuller Lake playground in North Cowichan, British Columbia!
The Children's Hospital of Philadelphia has a full-time genetic investigator, Dr. Veronique Lefebvre, working on SOX5 gene research!